Long, hard day for Connor...2 NG tubes,2 IV's, and lots of us feeling helpless as the nurses did their procedures on him.
Met with Dr. George after, and learned that there are some questionable spots around the outside of Connor's lungs-he said they do not appear to be cancer, but more like air pockets or "blebs" (whatever that means) He is going to be contacting a lung doctor for further input on what these are, but also added that he hadn't noticed before, but they were present in scans as far back as January...same shape, location, and size...What could these spots mean? As far as we know right now, the most common thing it could be is something called lung blebs, which is a condition that makes you a ticking time bomb for a collapsed lung (pnemothorax) Also-our trip to IL is now on hold, as Connor cannot fly now. These air pockets might burst at the high altitude causing his lungs to collapse mid-flight...not a chance we are willing to take, so the trip is off indefinitely for now.
I am waiting to hear back (something I am not good at!) to see what the next step is.
New specialist? More testing? We just do not know anything at this point-which is frustrating.
We are thankful for all the prayers for Connor, praise God for no tumor growth! We are not blind to the fact that even with this alarming news-we have so much to be thankful for...he remains NED! We will get through this new challenge. Please keep Connor in your prayers, we are very afraid, but hopeful there will be a simple explanation for all this...
God Bless,
Debbie
6 comments:
Poor baby! Still seems mighty unfair...even with NED. Love you lots...and, as always, many prayers!
This picture just breaks my heart. All any parent wants to do is protect their children. Not to be able is like a small death inside of you. Please know that my love, thoughts, and prayers are with you every day.
Mom
p.s. What is "NED?"
Well, at least he is NED, right? My brother had the same blebs and had a spontaneous pneumothorax three times in two years. He was 20-21 when it happened. He made it to the hospital in time and got the chest tube each time his lung collapsed. It was scary but he seems to be fine now (4 years later). After it happened the second time to the same lung, they did some kind of proceedure where they "roughed up" his lung so that it would build scar tissue and become stronger... or something like that?? I guess it has worked because he hasn't had another incident. I pray that your baby boy does not have to go through anything like that.. though, it would be much better than cancer I suppose.
Still praying for your little boy!
NED is No Evidence of Disease...
Debbie
Debbie
I am sorry sorry that you precious boy has to go though all of this. I really as hard for a mother to stand by and watch them do all the test and then wait for the answers. I am glad to hear that they did not fine a NB. I will keep your son and family in my thoughts and prays
Tara Woodman
Praise Our Lord that Connor remains NED ! I am sorry about the wait on the questions on his lungs but pray and trust that all will work out just fine - its in Our Lords Hands! Prayers continue
Samm mom to Deqlan
www.deqlanhiggins.blogspot.com
Post a Comment