Macy the Hospital Dog...

Connor made a new friend at the hospital today. We were sitting by the elevators (waiting for Daddy to come through the doors) and a teenage girl and her dad walked by with a beautiful black dog. She was visiting the pediatric floor and all the children! I don't know who was more shocked to see a dog in the hospital-me or Connor! He seemed to get a kick out of it and even pet her on the head. What a nice thing for that family to do-they had to get special training with their dog Macy to do this, and the kids all loved it.

The IVIG infusion went smoothly, just lasted late. We didn't get home until after 8pm...speech therapy is in the morning, and after that, spending time with Samantha, since her and Belle are going to spend the night with Aunt Lallie tomorrow. Just makes it so much easier since we have an early morning departure to Atlanta Wednesday morning. Thank you Laurie!

Connor was very subdued today and especially quiet. You could tell the last couple weeks have had an effect on him-very scared and worried looking. It is so frustrating not being able to explain any of this to him to help him understand WHY? Why Mama and Daddy have to hold him down and let nurses poke him with needles or shove tubes down him or put strange instruments on him...Yet he seems to forgive us each and every time and still looks to us for comfort from it all. Today he spent extra time in his stroller (even napped there) He just feel safe there we think, so if it helps him-we don't mind a bit.

We are asking God to keep a close watch over him on Wednesday as he receives the Rituximab treatment. We ask for no ill side effects or reactions from the medicine and for it to help him overcome his delays and help him breakthrough the barriers keeping him from speaking. For any brain damage that has been done to repair itself and for new damage to not occur. For continued improvement in his gait and with his body jerks, so that he can just be a little boy. And for his doctors to be guided to the right treatments for him to help him beat this. We have seen some remarkable improvements these past months-and we know God is listening and answering our prayers...in His time, in His time---those words are so hard to remember sometimes, but sooo true, especially for Connor.

All our love,
Debbie