Dreaming, Dancing, & Decadron...

Here is Connor in the midst of the Rituximab treatment last Wednesday. He was feeling the Benedryl (of which he had a lot) and decided to snooze his way through part of the fun. When all else fails-dreamland is a great way to forget where you are! :)

Connor is doing so well-he is his regular happy and mischievous little self. Only those who know him really well, can tell he is a little bit off still-just acting tired and he has small bags under his eyes.

Samantha has a big day ahead...We are going to a ballet school to get her registered for dance classes! This has been on her mind a longgg time now, since even before she saw The Nutcracker at Christmas time. I am biased, but I think she will make a lovely ballerina. She certainly has the grace for it, and the desire. Mostly I think it will be good for her to have an outlet away from home, and all that is going on with her baby brother, to express herself.

Still waiting to hear from Atlanta on the Decadron plans...meanwhile I am trying to think of new and ingenious ways to get a 2 year old, with no verbal skills or real understanding of what is going on, to swallow these pills. We have done this before-but he is REALLY resistant to all meds now, even Tylonel is a cause for a major freak out, and usually ends with half of it running down his face...so we might be forced to do the IV version-but I still have to get the daily antibiotics down him and possibly Pepsid as well...And unfortunately, we need to start ASAP on this, as his movements are becoming worse every day right now...

The final day of waiting is almost over and Stacy and Ryan will be home! Sunday night is when they are due in. I know it is only a month-but it is so strange how much they grow and change in such a short time. I can't wait to give them both some gigantic welcome home hugs, and I know I will sleep better when all of us are under one roof again...

Thanks for all the messages, emails, and calls to us this week. We are so blessed to have each and every one of you in our lives-praying for Connor and for us.

Love to all,
Debbie