Sunday, August 29, 2010
I cant believe it is almost September! The summer is almost over (well, officially it already is since school has been back in session for 3 weeks) Still SO hot here-wondering if fall will ever truly make it sometime before Christmas. I hope so because it seems most of our plans have been put on hold "until its cooler" lol it is just too hot to really do anything outdoors and it has been like this for a while now. So many things we want to do-go back to the beach, go to Callaway Gardens, go to the zoo...just waiting for the temps to drop at least 10 degrees first.
So its been a long time since I posted an update...Lots of reasons why-mainly being I have been very focused on the kids and enjoying them. Tired of all the electronic distractions-tonight the Emmy's came on TV and it surprised me to notice I didn't recognize MOST of the shows they were raving about! Not much on I am interested in watching.
I wanted to make sure I let everybody know that September is Childhood Cancer Awareness month...the gold ribbon in this picture represents childhood cancer and the purple handprint represents neuroblastoma. Just one month out of the year to try and bring attention to all the kids affected by cancer-way too many.
Connor is doing good. Back in school, adjusted well to his classroom-thankfully its the same one as last year so that helps a lot. Still weaning off of the steroids-this will take some time we are coming to find out...going very slowly as to not risk a relapse with his OMS. He is a trouper though and keeps surprising us with his strength and courage.
The rest of the kids (and Sam & I) are getting used to the new school hours. VERY different this year! Ryan and Stacy like the new morning times they have but they are getting home really late now in the afternoon. The little ones have a very early start but get out a little sooner now. (this sure helps with after school therapy appointment)
Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...