Connor's Corner

Friday, August 29, 2008

"Going Gray"

Sorry for the sporadic posting-no computer lately, and the laptap frustrates me...spent yesterday running errands and dealing with some restaurant stuff. One of my errands was taking Connor to get his hair trimmed. In the bright salon lighting I was horrified to look down at the top of Connor's head and see what is causing the "highlighed" look several people have commented on-GRAY HAIR! Not a whole lot-but more than any 2 yr. old should have. :( His hairdresser Deb looked surprised, until I told her that it was probably caused by the latest round of treatments in Atlanta. It made me feel sad though, I guess seeing an outward sign of how potent and powerful these treatments can be on such little bodies...
Speech went well yesterday, we are going to try and get Connor to use his sign language on his own-without prompting...so far no luck-but Stacy is hard at work teaching him! She is sooo good with him and loves him so much.

At the restaurant today we had a visit from a couple whose grandson has OMS and lives in Kentucky. Sam met him last year at church, when the man prayed out loud for "All children with OMS" Sam was shocked-given how rare and unknown this disease is...I spoke to him on the phone last year, but it was nice to meet him today. His grandson is 4 and just started to walk-although he still has no language. Anyway, it was nice to speak to someone familiar with OMS.

Happy Labor Day Weekend!!!

1 comment:

Anonymous said...

My posting as been very erratic too! Way busy these days. Gray hair?! We'll just call it highlights. I'm glad he didn't lose his hair...but, like you, I hate all the little signs of the powerful medicine he has to take. Prayers tonight for all.

Love, Aunt Kristi

*Our Family*

Photobucket

"Connor's 3rd Birthday in Pics"


Before OMS Onset....

Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...

"Holiday Slideshow 2008"

"A Year In Pictures-2008"


Slideshow Stacy Made!

Connor's 2nd Birthday April 2008

Halloween 2006

Connor George Khoury

Connor George Khoury