"Oh no! I'm back here AGAIN?"

Got off to a good start this morning-even had some silliness in the car on the way to Atlanta...Connor has discovered (against our liking) that chewing gum can be VERY entertaining. So many things to do with it, such as-chew it, taste it, stretch it, stick it in my hair, etc...He made this discovery while digging through Stacy's purse-and now a beast has been unleashed! :) No pack of gum escapes his watchful eyes-he must have a piece if he even sees a gum wrapper, lol, so as I was collecting trash in the car during the ride-he spotted it...me, desperate to keep him quiet-gave in. I wish I had taken pics of the silliness that came next, he was laughing and cracking up at my horror over his fun with the gum. This story does not have a happy ending-after 10 minutes of pure joy, he swallowed it of course, and was very sad.

Infusion went smoothly, thank you for the prayers for Connor today. He even was happy entering the building-until I took him to the bathroom to change his diaper and he spotted a child on a gurney coming out of sedation. He let out a blood curdling scream-and was inconsolable for a bit. He was looking at me like, "Oh no! I'm back here AGAIN?" Seeing the gurney really bothered him-I guess he knew he was next?

It was wild in the clinic today-the USA network was there filming a documentary for TV. They brought so much equipment in that the whole play area was blocked off...so we hung out in our room for most of the day.

Connor will start the Decadron this Friday. Dr. George was kind enough to have a plan in place for if Connor goes completely nuts while he is taking it ("Roid Rage") He is also starting back on his 3 X per week antibiotic to ward off any problems while his immune system is so low. I hope Connor doesn't have major problems with thrush in his mouth like last time he was on steroids for a long time...please keep the prayers coming for his health to remain well and for him to handle the steroids as best as he can. I am pretty anxious about the possibility of a virus knocking him down-especially with fall and winter approaching. All we can do is wash our hands a lot and try and keep him from getting infected from others.

On a positive note-Connor now knows how to sign about 8 words! Yippee! He is going to be scheduled for some tests to rate where he is at right now developmentally and again in 6 months. The doctor wants some kind of documentation of his progress on this new course of treatment. Not sure of the date for this yet...

Thanks for checking on us! And a great big thank you to Nini for helping out with the kiddos.

Love,
Debbie