Ahhh, this picture takes me right back to the moment I took it. Samantha was just about to go to bed, and our routine was to lay Connor on her bed while we got everything ready and picked out a story. He looked so small on her big bed, and she decided to lay down by him and they were just staring into each others eyes...pure magic and so much love shared!
Sharing old pics because of computer trouble, lol.
Busy days for us, lots of appointments-not just for Connor, but getting all the kiddos in to the dentist and the twins to the eye doctor. Trying to squeeze some fun in between all the boring stuff. We all played LIFE yesterday and it was funny-Belle swiped my game piece and ate my husband! The kids thought that was just hysterical!
Connor had speech and playgroup yesterday. He has been very quiet lately, not even doing much babbling. Playgroup was at Burger King and he had fun running around with Stacy there and sliding down the slide.
Just enjoying our time together before the craziness of next month. I am overwhelmed by the amount of paperwork I need to prepare and gather for the doctor in Illinois. Records, test results, full history, recent blood work needs to be faxed two weeks prior...it goes on and on. I also need to adjust the schedule for his IVIG treatments. Connor cannot receive IVIG in the 4 weeks prior to our trip, so I am going to try and get him in around the 30th of June for his last one for a while.
We haven't got our tickets yet, but our stay in Illinois seems to be arranged. We are (hopefully) going to be at the Ronald McDonald House and it is supposed to be close to the hospital. The appt. is set for 8:45am and the spinal tap at 11am. We should be there until 4 or 5 pm and able to leave the next day. Thanks to a very dear friend, we will even have transportation while we are there-without the hassle of renting a car. So things are falling into place...Just need lots of prayers for safe travels, and for God to work through these doctors in helping our son.
Love to all,
Debbie
2 comments:
So much going on! Love and prayers...
I truly don't know how you and Sam cope each day. God's grace shines on and through you. You are such a blessing to all of your children and a true blessing to me also! I'm so glad you have air again. It is a lot easier to have patience when you are not miserable!! Love to all.
Mom
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