Not Connor-ME! We haven't had air conditioning for 4 days now! So, to kill some time, I played around a little with some pictures, lol...Here is Connor last June at the beach. Check out the little surfer guy behind him-I thought that turned out cool!
No telling when the air will be working. Lightening struck our unit last Thursday night and smoke came flying out of it and set off all our fire alarms about 1 am. (It went out with a bang!) No fire thank goodness, but even a new unit hasn't fixed the air problem...hopefully soon because we are all pretty on edge from the heat. The high today was 94 F, and it feels cooler outside than in.
I'm having trouble with scheduling Connor's CT scan with Atlanta. It will probably be next Wednesday though...I'll keep everyone posted. Please have good thoughts and prayers for him that day-it is going to be a long, rough day. He is getting an NG tube inserted, in order for the contrast to be put directly into that, instead of him having to drink it. It has to be done very slowly over two hours and then his port will be accessed for the sedation. And of course-NPO, nothing to eat or drink.
Also, we are heading to Springfield, Illinois on July 27th to meet with an OMS specialist there. Connor will have a spinal tap done to determine the level of his B & C cells (results help decide the best treatment for him) We also haven't worked out those details yet.
No lasting inflammation from the IVIG troubles last week, thank goodness. His port appears fine and hopefully is in good working order. The next treatment will be on July 2nd.
God Bless,
Debbie
No comments:
Post a Comment