Good Feelings...

For the first time in over a week I am sitting at my computer desk in a cool house. That is such a good feeling, that most of us probably take for granted most of the time (including me) until it is gone! There are other things I do that with also-such as an ice cold diet soda (tastes better after not having one for a while, lol) Just silly stuff you don't think about all the time, you know?

I know before Connor's diagnosis I thought about sick kids from time to time-but I had never really known any children with chronic illnesses-so that kept it far from my thoughts. Now my world revolves around so many appointments it is mind boggling-medications, doctor visits, scans, therapy appointments, investigating new therapies that might be "The One", it is nuts! Add three other kids into that equation and it equals a fine balance and a lot of patience-for me, Sam, and all the children.

Our flights are scheduled for our trip, and everything seems to be working itself out. Thanks Aunt Kristi, Nini, and Aunt Lallie for all the help with Samantha and Belle, and of course Ryan and Stacy as well. We couldn't do this without our wonderful family helping us so much!

I heard back from our oncologist and he is prepared to start Connor on a new therapy as soon as we all figure out the best approach. We plan to use the information we get from the specialist in IL, and determine the next step. It will most likely be him going back on steroids, or trying a drug called Rituxan, or both. All the possibilities are not without risk, and therefore we are not going into this lightly. If he does steroids, it will probably be done at the hospital this time intravenously, instead of orally at home. Some kids do better with pulse doses-higher amounts for a few days vs. every day of lower dose steroids. The Rituxan is given by infusion weekly through his port, also at the hospital, as some reactions can occur and close medical supervision is needed. These are only a couple of the possibilities and nothing is for sure yet. All of it is depending on how Connor is doing-and that seems to change every day! Good and bad, never know...

Please keep upcoming appointments and Connor close in your prayers-We pray for a beautiful scan with no new tumors, along with OMS symptoms to continue to improve each day.

God Bless,
Debbie