Connor's Corner

Wednesday, June 17, 2009

Something I'm not good at...Waiting

Still no clue on what is going on with Samantha...went to the opthamologist Monday and he did a really thorough eye exam with SO many different tests-not just reading letters-but tests that looked into the structure of her eyes and he said everything is perfect. 20/20 vision, eyes perfectly aligned (inside and out) no infections, blocked tear ducts, etc...he sees no reason for her to be having the double vision and the rapid eye jerking and blinking.

He wrote orders for her to get her blood and urine tested. We went today and did that...In about 90% of cases of neuroblastoma, elevated levels of catecholamines or its metabolites are found in the urine or blood. Of course, Connor had this test and he was in the 10% that didn't show elevated levels, but he thought it was worth doing since her eyes are involved.

The nurse practitioner at the ped's office called today to check on her and I have a feeling they are going to order an MRI or CT scan just to rule things out. Right now we are feeling pretty positive about things, that it is just a weird occurrence with no explanation...

The eye doctor did say if it was his child he would get her scanned...brain and body, just in case...we are going to ask Connor's doctor his opinion and go with that most likely.

It has been over a week now and she is still having double vision, but not as much jerking going on. We are simply praying!

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*Our Family*

Photobucket

"Connor's 3rd Birthday in Pics"


Before OMS Onset....

Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...

"Holiday Slideshow 2008"

"A Year In Pictures-2008"


Slideshow Stacy Made!

Connor's 2nd Birthday April 2008

Halloween 2006

Connor George Khoury

Connor George Khoury