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*Our Family*
"Holiday Slideshow 2008"
Connor George Khoury
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"Safe in Daddy's Hands"
"Princess Belle"
Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma...
What Is OMS?
Opsoclonus Myoclonus Syndrome is an extremely rare auto-immune disorder that affects as few as 80 children a year in the United States. It is caused by a neuroblastoma, a cancerous tumor, or a virus. It is thought that antibodies in the immune system designed to fight off the tumor (or virus) end up attacking the brain as well.
The symptoms of OMS are frightening. A young child who is growing and developing normally suddenly begins to shake uncontrollably and has severe muscle and eye jerks. This soon leads to the inability to walk, talk, sit or even hold their head up. If not treated properly, OMS leads to severe behavioral problems and learning disabilities as well. The disease is not fatal, but children with OMS suffer from permanent brain damage.
There is no cure for OMS. Several treatments, including chemotherapy, are used in an attempt to induce a neurological remission. Unfortunately, relapses are common. The immune system can be activated as medicines are withdrawn, or if the child comes down with a cold or fever. The attack on the brain continues with each relapse.
The symptoms of OMS are frightening. A young child who is growing and developing normally suddenly begins to shake uncontrollably and has severe muscle and eye jerks. This soon leads to the inability to walk, talk, sit or even hold their head up. If not treated properly, OMS leads to severe behavioral problems and learning disabilities as well. The disease is not fatal, but children with OMS suffer from permanent brain damage.
There is no cure for OMS. Several treatments, including chemotherapy, are used in an attempt to induce a neurological remission. Unfortunately, relapses are common. The immune system can be activated as medicines are withdrawn, or if the child comes down with a cold or fever. The attack on the brain continues with each relapse.
Daddy & Connor
"Safe in Daddy's Hands"
"Love"
Connor George Khoury
Yum-Yum!
Samantha & Connor...Friends Forever
Made by Samm & Megan...Thank you!
Important Dates
- 9/1/10 29th Decadron Cycle
- 9/15/10 IVIg in Atlanta
Sleeping on Daddy...
"Mama & Connor"
Baby Connor!
About Me
- Debbie
- I am 36 years old and have a wonderful husband named Sam. We have four great kids...twins Ryan & Stacy (14) Samantha (6) and the baby Connor (3)We recently added a puppy to our hectic house (named Belle).
Sweet Sissie Stacy!
Ryan & Samantha
Our Puppy
"Princess Belle"
Check These Out...
- Connor Khoury CaringBridge (The Beginning of Our Journey)
- Charlize Merghart (NB Warrior, Fighting OMS)
- Braeden Burgess (NB & OMS Angel)
- Walter Henry Thomas (Fighting OMS)
- Joey (NB Warrior, Fighting OMS)
- Traeson Hickman (Fighting OMS)
- Lenzie Butland (NB Warrior, Fighting OMS)
- Makhi Woodman (NB Warrior, Fighting OMS)
- Jacob (NB Warrior, Fighting OMS)
- Kaitlyn Eatherton (NB Warrior, Fighting OMS)
- Zoe Cadence (NB Warrior, Fighting OMS)
- Rowan Mauro (Fighting OMS)
- Gabrielle Moss (NB Warrior, Fighting OMS)
- Tony Tzoubris (Fighting OMS)
- Emily Brown (NB Warrior, Fighting OMS)
- Travon St.Clair (NB Warrior, Fighting OMS)
- Jymani Phiffer (Fighting OMS)
- Ryan Morgan (NB Warrior)
- Nathan Michael Gentry (NB Angel)
- Austin Melgar ( NB angel)
- Emily Adamson ( NB Angel)
- Mashed Potatoes For Breakfast
- Deqlan Ross Higgins (NB Warrior)
- Will Lacey (NB Warrior)
- Prince Liam The Brave (NB Warrior)
- Childrens Neuroblastoma Cancer Foundation
- Pedictric OMS Research Fund
- I Will Lift My Eyes Video
- Keep Breathing Video
- Bookwyrm 101
- Tobie Alison Photography
Family Fun!
Debbie's Favorite Tunes
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