Connor's Corner

Wednesday, June 10, 2009

Look-A-Likes?



So what do you all think? Here are a couple pics of Samantha when she was 3 1/2 years old (right after Connor was born)...I can look at her face and see so much of Connor! Granted-he is on mega-doses of steroids and it has changed his looks by filling out his face a lot and giving him more facial hair than most 3 yr. olds normally have, lol, but they look quite similar to me still.
Rough day today with Connor-more of the raging even though he should be calming down from them...poor Ryan and Belle are bearing the brunt of it unfortunately-lots of anger taken out on them for some reason? With Sam on the road so much now, it is really hard to keep up with the mood swings and sleep issues all by myself...it is giving me sleep issues just from dealing with his, lol.
This is the 2 year mark now for us from when we first noticed Connor's symptoms and our lives changed forever. When will I stop counting all these "anniversaries"? June will always be remembered for how he was deteriorating before our eyes, July and August for the unknown and hospital trips, tests, and fear bigger than we could imagine...and September as the soul-splitting diagnosis was given to us-followed by more test results in October, good news that his cancer was able to be surgically removed, but being told it is at a cost to his brain and entire future with the OMS diagnosis. Certainly not how we pictured the first few years with our baby boy...still-he has been more JOY than we could ever dream possible, when he smiles-we call it his "million dollar smile" :-) And his words that are just now forming are a gift to our ears and more precious than we knew possible.
Samantha has been having some eye twitching in her right eye the past few days-which has me completely freaking out on the inside, trying to stay calm on the outside...probably nothing, but any sort of eye movements to a parent of an OMS child are reason to let panic seep in. In any case, I am going to take her to the eye doctor/pediatrician if it continues...
Good-Night and please remember all our NB friends and OMS buddies in your prayers!
Deb

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*Our Family*

Photobucket

"Connor's 3rd Birthday in Pics"


Before OMS Onset....

Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...

"Holiday Slideshow 2008"

"A Year In Pictures-2008"


Slideshow Stacy Made!

Connor's 2nd Birthday April 2008

Halloween 2006

Connor George Khoury

Connor George Khoury