New happenings...

Last week I checked out a place I just heard about that does pediatric care for medically fragile children RIGHT here in town! It just opened a year and half ago, but they have centers all over the place, it is called Pediatria.

If it works out it would mean getting local or possibly even home infusions for Connor, instead of all the traveling we are doing right now to Atlanta. It is so hard, packing the kids up, juggling all the kids around the night before, and leaving at the crack of dawn (usually 5 am) and coming home late, picking everybody up, unpacking, it is just so hard.

And get this-they even babysit at the center! It is staffed by nurses and they take care of all the kids...it is like a daycare/hospital center. So I would have an option for a place to leave him if I need a break and not have to worry about them not being able to deal with him.

It was amazing! Bright, cheery, clean, open, nice nurses...big playground, indoor playground as well...

They have 11 kids there now and they are ALL on Medicaid or have that grant we are trying to get (Katie Beckett) so they were unsure about Connor since he has regular insurance. (doesn't that stink that they PREFER Medicaid to people that don't qualify? Agg! another story, lol)

The RN called me and said the my health insurance is okay with unlimited home infusions. I am so excited. She said once we (hopefully) get Katie Beckett that they will be able to provide more for us like the respite care.

Next hurdle-making sure the pharmacy we use to mix the meds is ok with our insurance-don't want to get stuck with that bill!

Other than waiting to hear from STEPS and doing speech therapy as usual-not much going on since we got back from Disney. It has been a quiet week for a change-Connor had a rough night last night (the first night off the Zyprexa is always a rough one) and kept us up most of the night. Me and Sam were zombies today.

Connor is pretty bloated right now from the steroids this month-and was extremely hungry this time as well poor thing. At his cousins birthday party last Saturday, he ran and got himself a fork and dug into the cake before we even got to sing Happy Birthday (sorry Erin and Adam)

Thanks for checking on us and keeping Connor in your prayers.

Debbie