Connor's Corner

Thursday, March 26, 2009

More treatments in Atlanta tomorrow

Going tomorrow to Atlanta...the doctor called me today and we had a good talk about the pros and cons of each medicine. In the end we decided that the Cytoxan has the best chance of stopping this relapse quickly. We will also probably do the Rituximab when this one is finished since we had such good cognitive effects from it last summer.

Not sure yet how many treatments he will have-but please keep him in your prayers for the least possible side effects and the BEST possible results.

Gotta be there at 8am, so the kids are spending the night at Aunt Laurie's tonight. (thanks La)

It is lose-dose chemo, so he shouldn't get too sick from it. Last time he had about 2 rough days of nausea...hopefully the Zofran will be enough to keep it under control.

It has been tough around here-he is just a mess from the steroids. Uncontrollable, fitful, crying, sad, mean, tired, it goes on and on. Usually he has the Zyprexa on board before he starts the steroids, which help counteract the side-effects. This time we started them sooner and unexpectedly-now we know how much of a difference the anti-psychotics make with the steroids for him.

I'll update as soon as possible and let you know how he is doing-pray for relief of these eye symptoms specifically please...Also, Connor's OMS buddies Travon and Jymani aren't doing well either, Jymani is in the hospital and Travon's family is battling to get their insurance to pay for his medicine he needs.

Love,
Debbie

1 comment:

Anonymous said...

Sending positive thoughts and prayers up for you all!!!!! Stay strong!

~Jodi & Travon

*Our Family*

Photobucket

"Connor's 3rd Birthday in Pics"


Before OMS Onset....

Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...

"Holiday Slideshow 2008"

"A Year In Pictures-2008"


Slideshow Stacy Made!

Connor's 2nd Birthday April 2008

Halloween 2006

Connor George Khoury

Connor George Khoury