So proud of our guy...

Connor had his neuro-psych developmental testing done in Atlanta this morning. Good day for him (no pokes!) Very nice change from the usual routine. :) I don't want to go into to much detail until the final reports are in on this mornings events (should be about 30 days until we get everything back) but it was about as we expected, maybe a little worse. Just so hard to hear, and type, things you don't want to be going on with your baby...Our guy is very behind as we already knew, but as you can imagine-we are still having trouble with the "accepting area" of all this. Hearing (and seeing) with our own eyes, as he struggled to do simple tasks, was heartbreaking to watch. All we can do is continue to love him, pray for him with all our might, and enjoy him. Oh-and a bit more...

Tomorrow begins our battle with our insurance company over getting coverage for Connor to begin new therapies locally. Also, today was step one in our fight to try and get Connor covered under something called The Katie Beckett Waiver. This waiver enables severely disabled children and adults to be cared for at home and be eligible for Medicaid based on the individual’s income and assets alone. Without the waiver, the income of legally liable relatives is counted when the individual is cared for at home. In other words-if you make too much money to qualify for Medicaid-you might qualify for this...but it is VERY tough to get approved, and some families are turned down several times before being approved. But if we do get this waiver-ALL of Connor's bills not covered by our insurance would be covered. This would be a huge blessing for Connor, he would be able to have as much therapy as he needs-and as recommended for him by his expert team of doctors, instead of by an insurance company who doesn't want to pay for any therapy at all...

Thanks for checking on us. Please keep praying for Connor to do well-that means more to us than anything.
Debbie