After his treatment last Wednesday in Atlanta-Connor started walking again on a much more regular basis. I am keeping a careful log of his treatments and walking vs. crawling-so we can get a better idea of how he is doing. It seems the IVIG is REALLY helping him more than we knew since he had his infusion and within hours started walking and now five days later-still no crawling! :) What does this mean? Well, possibly longer or more often treatments? We have no idea, but it sure is nice to see him on his feet. Even at his usual crawling place (playgroup, Nini's house, etc) he has been doing awesome. Also, walking in parking lots again and the yard thank goodness.
Not sure how long this will last...he started back on the Zyprexa today and Wednesday is the next Decadron cycle. Please keep him in your prayers for an easy time with it-it is so rough on him to be taking these steroids.
We have been busy celebrating my BIL's marriage to my new SIL Magdalena! The wedding was beautiful and we had a blast. (Pics to come!) My camera decided to go batty on me and take fuzzy pictures, but I have a few good ones to share. Samantha was a doll as the flower girl and enjoyed every minute of it-well, except the hair pins maybe, lol.
Stacy & Ryan are still waiting to hear if they got into Columbus High or not (pray) The next round of tests for them will be the 21st of Feb at Hardaway. Maybe we will hear good news before then and they won't need to go? :) Hope so! We are also planning a trip to Seaworld around that time, so it would be nice if it was a celebration vacation, right?
Sorry for the lack of updates, just too busy with little guy to get on the computer much...also, with paperwork for STEPS, Katie Beckett, the insurance, appts.,etc...it goes on and on.
I checked out Braeden's page earlier and he is still hanging in like a trooper. Stop by his page if you can and leave his parents a note, they are suffering so terribly right now. So many prayers for this precious boy, may God hear them and ease all of their pain.
Love,
Debbie
Connor's Corner
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"Connor's 3rd Birthday in Pics"
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Connor George Khoury
1 comment:
SO SO glad to hear the good news on Connor!! I had a dream about you guys the other night..strange and very random but it was nice! We met at a mall and were visiting and all of our kids were playing together. I have always said that it would be neat for all of us OMS parents to be able to meet together..lol. Anyways, hope all continues to go well. Travon starts decadron cycle number 2 tomorrow for this month. We'll get to see how 2 cycles a month affects him..hopefully nothing to major!! Take care!
~Jodi
www.caringbridge.org/visit/travonstclair
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