"One-of-Those" updates...

Wanted to let everyone know that Connor needs some extra prayers right now. He has had some set-backs creep back up on us...slowly (just slow enough for me to try and hope it wasn't really happening)

For the last month he hasn't wanted to walk in parking lots. Then, he stopped walking in our front yard. Which was a HUGE thing, since his favorite activity is playing outside. Now he doesn't want to play in the backyard either. We think he is having some shakiness in his legs and just a general unsureness about his balance, making him scared to walk outside.

Tonight he wanted to go for a walk very badly with his doggy Belle, but instead of just coming with us-he headed to his little wagon we keep in the garage and just sat there and waited for me to come and pull him...Anyone who knows him in person knows this is completely NOT like him. :(

So, Samantha walked Belle and I pulled Connor along in the wagon to see the Christmas lights. He had fun seeing the decorations, but made no move to get out and play.

There have been other little things too. Lots of stroller time-yesterday at Samantha's school Christmas party I knew I better bring the stroller-not just for his sake, but for mine. He is getting pretty heavy to be carrying long distances-like all the way from the car, to her classroom, and stopping to check in at the office, while holding lots of bags. He was quite content to ride along, but I was happy he did get out and stand near Samantha during the party.

We also went to The Landings to see the Clydesdale Horses that came to town-and Connor stayed in the stroller the WHOLE time. Again, not like him...in between all of this, he is spending lots of time crawling at home.

Hopefully, Tuesday's IVIG and the next steroid treatment will get him back on his feet again full-time.

Ryan and Stacy made it safely to the wintry northwest a few minutes ago. Thanks for all the prayers for their traveling safety-it seems it is much needed with all this crazy weather! :)

Please keep all the little children with OMS in your thoughts and prayers this holiday season. So many are suffering, and there are just so few clear answers on how to help these kids.

Love,
Debbie