"Choo-Choo Day"

Today was supposed to be a really fun day for Connor-it was train day at playgroup and right now trains are his favorite thing to play with...he is still feeling puny and just not well. Could be the meds, could be some touches of the virus he had last week still upsetting his system-but whatever it is-we are ready for it to go away! We made it to playgroup and it started good, but after a while Connor very clearly expressed his desire to leave. He kept pointing to the door and saying, "Baaa" as in "BYE" and was signing "all done". :-) Pretty clear don't you think? His therapist was so pleased he was communicating-she said I probably should listen to him and go ahead and call it quits and leave-so we did. Here are some pics of him from this morning-you can really tell in the 2nd pic how rough the last few weeks have been on him. He just looks very tired and his face, which should be pretty puffy from the steroids, is looking almost thin (for him)

Samantha has caught the throwing up bug and was home from school today. We hope she is better in time for her party Saturday.

We missed Fantasy in Lights today because of all this-so we hope to go next week sometime. We can't wait to see Connor's reaction to all the pretty Christmas lights! Ryan, Stacy, and Samantha love it too-no matter how many times we see it, it is still magical.

I'm VERY excited about all the links on the right-hand side of the blog I have been collecting! When Connor was first diagnosed, there were hardly any stories out in "cyberspace" about other kids going through the same thing as he is, fighting OMS. Not surprising-since only 1 in 10 million people are diagnosed with this condition each year. If you have time-check out Connor's friends from all over the world, battling each day to beat OMS. Thanks to all who emailed me their kids sites to share. :)

Thanks for checking on us. Please keep praying for a cure to be found for Connor and the rest of the children like him.

Love,
Debbie