This weekend is another high-dose steroid weekend followed by the 2 weeks of pain and steroid psychosis which means hours upon hours of crying and hurting.
We have hope for this cycle though-Dr. George is putting him on a new medicine to combat the "craziness" he gets while on the steroids. Most leukemia patients who take HALF the amount of steroids Connor does, can't deal with the side effects so we feel we have no choice but to try and help him get through this any way we can.
He is making so much progress right now mentally that we can't afford for him to be physically unable to learn for half of the month. KWIM?
Can you tell we didn't want to add yet another med to his little body? But I feel this is a good move to at least try for this cycle to se if he tolerates it better. It sure can't get much worse!
He starts it a couple days before the steroids, so we give it to him Thanksgiving night for the first time. Pray that it helps him please. The poor baby is just really suffering right now and could use a break. Love to all and thanks for checking on all of us.
Have a Happy and Blessed Thanksgiving,
Debbie
We have hope for this cycle though-Dr. George is putting him on a new medicine to combat the "craziness" he gets while on the steroids. Most leukemia patients who take HALF the amount of steroids Connor does, can't deal with the side effects so we feel we have no choice but to try and help him get through this any way we can.
He is making so much progress right now mentally that we can't afford for him to be physically unable to learn for half of the month. KWIM?
Can you tell we didn't want to add yet another med to his little body? But I feel this is a good move to at least try for this cycle to se if he tolerates it better. It sure can't get much worse!
He starts it a couple days before the steroids, so we give it to him Thanksgiving night for the first time. Pray that it helps him please. The poor baby is just really suffering right now and could use a break. Love to all and thanks for checking on all of us.
Have a Happy and Blessed Thanksgiving,
Debbie
1 comment:
I'm so sorry Connor is having such a hard time. Thank you for signing Nathan's guestbook. If you click on my username on this comment you will see a link to my personal blog if you would like to keep up with us.
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