"Playing Catch-Up"

Here it is the week before Thanksgiving already! We are looking forward to a funfilled holiday and some much needed family time doing nothing more than hanging out, decorating, and seeing family. Okay-for those of you who know me, you know all that will take place after some careful planning, school letting out, a carpet cleaning, and a clinic visit for "you-know-who" LOL But it WILL happen...

So the good news for the week is that Connor is learning new things every day. He learned how to sign Choo-Choo for his trains and is using that one a lot, he is still trying to talk and even said Bubba at Ryan this week (yeah!) and Ball at a ball at Walmart with no prompting. :) Amazing!
He is waving bye-bye more often. Just so much more aware of the world around him.

The bad news is that he isn't getting to enjoy his steroid downtime too much right now due to some pretty severe mouth problems he has had for a few days now. It started with him not wanting to brush his teeth, then not wanting to eat, and now he is screaming in pain and keeps his fingers in his mouth while crying and holding the area under his tongue.

It doesn't seem to be a bad case of thrush this time-although he has had a small touch of it for a while now, pretty common for kids with compromised immune systems...it looks like painful mouth ulcers, something he managed to avoid during his months on chemo and all the time on prednisone. There is no way we are going to be able to get him to swish and spit any of the remedies/preventatives that might be able to help him so the only thing I know to try is something like Orabase to ease the pain a bit. I am putting a call in to the doctor in the morning for advice-he can't wait until Tuesday, poor baby hasn't hardly eaten in days. Even his favorite foods.

Today me and Connor went to Blanchard to eat lunch with Samantha-it was so fun to see her with all her friends! We sat by ourselves at a little table and even though Connor couldn't eat-he really enjoyed watching all the other kids in the cafeteria. I was so proud of Samantha watching her carry her lucnch tray all by herself, she sure seems like a big girl now.

Then me and Connor were able to visit one of the STEPS classrooms where he might be attending next year. It was REALLY hard to picture him in there without me all by himself. :(
So very much to learn...I know it is what is best for him in the longrun-but my goodness, I need to pray for peace on this matter-because just the thought makes me feel weak about leaving him there.

Thanks for checking on us-
Deb