Kids are keeping me hopping, high school especially has been a Wowser with all they have going on...dances, homework, socials, field trips, projects, reports, after school activities-you get the picture! Studying with Samantha after Connor goes to bed is killing my evenings too! Busy kids=busy Mama, lol...
Connor's behavior has been much better thank goodness. Still can't leave him alone for second-but he is calmer at least. He seems to really like school now, he is very quiet there, but the routine is doing him good. No new words though-really have hit a standstill again.
Last appointment in Atlanta went good. Connor kept busy with his special arts & crafts he likes to do while he is hooked up. And the BEST part...He didn't have to have the 2nd infusion :-) so we saved an hour! He is on oral Bactrim now Sat & Sun every week. I met with the nurse practitioner and next time we go (Oct. 13) they will run blood-work to see when we will do chemo again...depends on how his B-cells are looking. It's been about 6 months since his last chemo treatments, and I'm hoping after he gets it again we will see some new language and other positive signs like the last two times he has had this drug. (Praying)
We leave for Camp Sunshine on the 9th of October for family camp weekend! I am worried how Connor will do there, but we are hoping for the best. I know Ryan and Stacy will enjoy it (they went last year for sibling camp and LOVED the activities) It'll be some good family time and a chance to meet other families with special kiddos. I'll be sure to take pics to share here!
I need to say a special THANK YOU to my dear friend Theresa and her family for the extremely well-timed card they sent our way recently. I appreciate the love, support, and prayers more than I can say. Miss you guys!!!
Connor is still enjoying cooking a lot. He is so cute "helping" me in the kitchen. The other day I was making a macaroni salad and chopping lots of veggies to throw in-he likes to pull a chair up to the counter to watch. I told him not to touch the knife and he went and got a little yellow plastic knife and spent 30 minutes mashing up a piece of celery with it, lol! It really holds his attention to help in the kitchen. :-) So sweet!
Ryan and Stacy spent quite a few hours last weekend with their Aunt Beth helping her set up Halloween decorations. It is a fun time of year for them-my sister goes all out and we are lucky that Halloween is on a Saturday this year for my sisters BIG BASH. Stacy has her costume bought and hanging ready to wear, it is a funny one this year-she is going to be a Prom Queen with the sash and everything, but with cool gloves and accessories. Ryan is even thinking of dressing up this year and this was a shock because he hasn't for two years now. I'm glad they still want to, it sure makes it fun for all of us. Even Connor keeps signing the sign for candy whenever he hears the word Halloween, lol! He is excited about that part for sure!
I'm not sure yet what is going on at the restaurant for Halloween, but I'll post it here and on Facebook when I find out. I hope things are calmer this year and no one tries to show up in anything crazy-a couple years ago a guy had to be "removed" for not wearing ANY clothing at all...not sure what his costume was supposed to be, lol!
Love,
Debbie
Subscribe to:
Post Comments (Atom)
Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
1 comment:
Hi Guys so glad to hear all going well - praying to that the next treatments continue to show great great promise and for Connor to improve and soar! Sending you lots of love and hugs and prayers, have a lovely weekend and lovely time at camp! Mark Samm Deqlan Logan
Post a Comment