Connor with a VERY special friend-my team captain Elizabeth! He calls her "Aunt Graham"
Beautiful balloon release after the 1st survivor's lap!
Our campsite-our theme this year was "Toon Out Cancer" with Scooby-Doo as our character, so cute!
Ryan and Steven relaxing by the fans with their iPods
Connor with his teacher Ms. Giles-thank you for supporting our boy!!!
Mama & Connor (with BIG eyes, lol)
Connor LOVES Ms. Hollis-his other teacher at school, she is an angel!
I thought he'd be able to walk this year, but needed the stroller since his legs were hurting so badly...still handsome as ever!
Steven,Caitlyn,Rio, Stacy, and Whitney cheering Connor on during the survivor lap!
This was a precious shot of Connor and Chloe-both the honorary children for this years RFL event.
Me and my two little ones!
Last Friday we had our 3rd Relay for Life and it was so amazing! Connor did great with his "duties" mostly just being there and leading the survivor and luminary walk with little Chloe-his co-chair for the event. He was on Day 2 of his steroid dose and we expected it might be hard for him with all the walking-so he did end up having to use the stroller for the walks. It was such a moving night!
Who's heart couldn't have been moved hearing the song "Imagine" and then watching Chloe and Connor carry the torch around the track, while the bagpipe player was behind us playing "Amazing Grace"...These two represent so much to so many- Mostly Hope! So little to have gone through so much already...yet still smiling and ready to take on the world.
Thank you so much to my team captain, Elizabeth Graham, for nominating Connor and being keeping us so informed and involved in all the activities. Our tent at Kinnett Stadium was so cute! Connor and all the kids love it-even Ryan who is a HUGE Scooby-Doo fan! Samantha had her face painted, jumped in the jumpee, and enjoyed cotton candy while Stacy had a ball walking ALL her laps with her friends. Connor did have some cotton candy-but seemed to be most excited just to be there. It was like he knew it was something BIG-something that meant something, although he cannot comprehend exactly what yet. He thought it was all a big party for him, and in a way it was-for us anyway. We are beyond blessed that he is doing so well and pray every day for his OMS to stay far, far, away!
Thank you to all who donated to me on behalf of Connor. Wish I had pics to share of the two little ones carrying the torch during the luminary ceremony-but it was too dark, lol. But will ALWAYS be special to me, and I believe all who were there to see these tiny children representing HOPE so very well.
Love,
Debbie
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
1 comment:
Oh Wow! I LOVED LOVED LOVED the pics! Connor is so amazing (as are his mama and family) and looks so GREAT! I am feeling proud of him as an "outsider" looking in, so I can only imagine that you are overcome each and every day by his courage, strength and resiliency. What a brave and happy boy he is!
It is true what you said...the little ones really tug at the heart strings! They carry on with a smile despite their challenges, simply because they know no different. (we could all learn a lesson here!)
Eli would have loved the campsite decorations...he's a Scooby Doo fan all the way!!!
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