Bathtime Fun!
The Big Top Cupcake!
Random colorings by Connor...
Samantha's American Girl Doll in her jammies "aka, hospital jammies according to Connor" He is right though-they DO look like hospital gowns at Scottish Rite, lol!
Seems at the moment we are living from steroid cycle to steroid cycle...one BAD week, then a break, then it all starts all over again. Sorry I am updating so seldom-the only time I can find time to do it is when his pain for the month is over AND the computer is free-no small thing with the twins needing the computer for homework everyday! And even now Samantha has started having some computer homework too, it blows my mind.
This last round was another rough one, for Connor and Mommy. So much pain I ended up bringing in some Motrin to his school to help hold him over through the day until he can get home and take something stronger. He is such a big boy though-even when he is hurting, he is still so good at school! Praise God!
He is excited about his birthday coming up soon (April 26th) That evening we will be at one of the relay rallies for Relay for Life and he will get introduced to all the teams working so hard to make this a successful RFL 2010.
His party will be April 24th, at home of course away from all the germies everywhere else,-he is VERY excited about the theme- Handy Manny! I have to come up with a cake to meet whatever expectations he has in his mind, lol, I hope I can make him proud.
Cannot wait for Spring Break-if his health (and mine) make us able to travel okay, we will be headed to Florida! No definite plans except arrangements for the dog. We like to play it by ear just in case Connor is too sick to go.
We have lost a lot of sweet children this past month to neuroblastoma and also a darling little boy named Reid who had OMS, taken far too soon from his family...please keep these families in your prayers, rough days ahead for them, although heaven is certain to have these angels laughing and playing together!
Happy Easter to all our dear friends,
Debbie
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
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