Ahh, the relief!

Connor's grandfather gave him a tube of some "muscle & joint pain relief cream"-you know, the stinky stuff that smells like Ben-Gay, lol. Connor is obsessed with it now! He is carrying it everywhere he goes and it seems to be helping him out some. I just thought it was funny for some reason-I guess since it is being used by a 3 yr. old might have something to do with it?

CLinic went smoothly today. I didn't know wether to be happy or sad that Connor did SO awesome for getting his port accessed...i was happy for him that he laid down and didn't make a fuss, but then another part of me was thinking this is so sad-he has finally truly accepted that this is what he has to do. What a brave little fighter he is, so tough and strong through all the pokes and sticks and the medical tape he hates so much. He even despises putting the numbing cream on before had, it is all cold and icky feeling- but he takes that too! Connor is amazing!

Good report from the doctor, no immediate plans to get off the steroids-fine by me, I am scared beyond wrords of him having no protection for his growing brain. I do believe it will be within the next 6 months that we wean him off...or possibly decrease based on Connor's pain level with them.

Got our check in call with the Make-A-Wish organization! Everything seems on track for Connor to get his wish in the named time frame of 6-12 months. Still not quite sure what he will pick-as he gets older his intersts are changing often...right now he is totally into Handy Manny and is obsessed with "fixing" things all around the house.

Monday we have a little photo shoot set up for Relay For Life, along with little Chloe Shiver, since they are the two chosen honorary children for the event. I'm a little worried about the weather since it is going to be outside, and also worried becasue Connor is having a problem with wind right now touching his head. ?? Strange, I know, lol. So he might end up in a cute hat for the pic, we will see I guess!

Little Layla Grace passed away earlier today...my heart sank when I heard the news, but thank goodness there is no more pain for this sweet two year old baby girl. She suffered from neuroblastoma and her family could use as many prayers as you can send!
www.twitter.com/laylagrace

Thanks for checking on us, with love-
Deb