WOW-one small word to try and sum up all the craziness we have had lately. The good kind of crazy though-just super busy. Errands and appointments every day have made computer time very limited (okay, non-exisitent, LOL) This week is a bit slower...a trip to Atlanta for Connor's infusions is set for Wednesday-but nothing out of the ordinary.
Our little friend Travon had a story published in his local newspaper about him and his struggle with OMS. I was thrilled to see awareness spreading by the article! Check it out HERE if you want and see Travon and hear his families story.
Connor has had some progress with speech the past couple weeks. He is now saying a few more words (although very garbled) The newest was today in the car Samantha was telling knock-knock jokes, and Connor began knocking his hand and saying "Na-Na" He was trying SO hard to get the whole word out, but that is all that would come. We all cheered for him and I called Sam right away to share the good news with him. He also has been saying Ut-oh very well a lot and began adding the "dee" to the end of Daddy (instead of just Da) Wow is another new one, although that one comes out as "Owww" :) He is making progress though, thank goodness for that and we are so grateful for the prayers that have made this possible.
Samantha is doing great with her cast-not letting it slow her down much at all! Look closely at the picture below and you can see her pink and purple striped cast. This is a pic of Samantha and Kate (her best friend for half her life) on Valentine's Day. Next week she is the star student of the week and I have a feeling she is going to be toting her cast collection to school to show her friends...how sad is that to have a collection of casts at 6 years old? LOL Hopefully this is the last.
I'll try and do better on the updating...I actually have quite a few pics I want to share from the past few weeks.
Love to all!
Deb
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
2 comments:
the pics of Connor are to gorgeous, what a beautiful child, all your kids are! Go Connor! Trying so hard, watch this space, in no time at all, you will be speaking the hind legs of a donkey! Prayers continue always, please pray for Deqlans results on Friday, God Bless and Love Mark Samm Deqlan Logan
Wonderful news to hear that Connor is saying more words! Speech is one of the biggest hurdles our little guys have to face but it truly amazes me how hard and determined they are to get the words out as best as they can! I hope all continues to go well. Take care!
~Jodi & Travon
www.caringbridge.org/visit/travonstclair
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