Sorry for the lack of posts-STILL no home computer. Everything is going well, Connor is doing better than he has in quite a while. (yeah!) We think the high dose steroids have made a big improvement with his myoclonus. Much less body jerking going on-still having some of his hiccups/lung jerks, but improved overall. This weekend he takes round 2-wish us luck with the mood swings, it gets ugly!
He also has been learning about time out, and it is helping a lot with some of the naughty behavior. Also, yesterday during speech, we decided to concentrate for this week on him learning the signs for open, stop, out, and go. He is picking them up pretty quickly right now and tonight at dinner when he wanted a drink-he did the sign all on his own! So cute!
Samantha started her dance lessons Tuesday night...the first class was hard for her, she was scared to death with butterflies in her stomach. But afterwords she seemed to love it! The dance school is very close to the restaurant so me and Sam ran over for a quick bite to eat unitl the class was done.
Speaking of the restaurant-it is awesome!!! The decor, the service, the food especially-all of it has come together so well. Stop by if you get a chance and have a margarita. (yum-yum) All the kids seem to love it there (even Ryan) so it is fun to have a "new" place to hang out. LaMargarita is off to a great start, I'll post some pics as soon as our computer is fixed.
Today is my mom's birthday and we are celebrating tomorrow night with Grandma Brown who is visiting from Reno. Happy Birthday Mom! We love you!
Connor's Corner
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2 comments:
Wow it sounds like you are still crazy busy. I am so happy to hear that you are starting to see some improvement in Connor. I really understand what you mean about the mood swings they are really no fun. It is so hard to deal with knowing that it is because of the medicine.
Take Care give Conner a Hug from me and Makhi
www.makhiwoodman.blogspot.com
HELLO DEBBIE AND GANG
So sorry we have been so quiet - we had a very busy but wonderful week, Deqlans port was taken out! So glad to hear that Connor doing well and less side effects and that the signs are coming now fast and furios! I have bought a dvd and book and cards to continue trying to teach Deqlan, he knows open! I hope you dont mind we also downloaded the music onto out blog and Celine Dions miracle song - to beautiful for words! Thanks for the idea! Have a lovely weekend
Love and God Bless
Samm and Deqlan
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