Hopefully Thanksgiving was as special for all of you as it was for us. We had a good time over at my mothers house(lots of yummy food, Mmm) and mostly just spending time together and watching the kids enjoy themselves.
Connor has been so happy lately! It has been fun to see him laughing, playing, giggling, and silly. We went to the mall last weekend and he climbed right up onto Santa's lap! Even said, "Pools" when Santa asked him what he wanted for Christmas, translation: tools :-) He still has his very hyper, active side that I struggle to keep up with, but it is such a blessing to see him like this.
The only thing that put a damper on the holiday weekend was Connor had quite a bit of pain during this round of steroids...by the 3rd day he was screaming if I even moved his legs when changing his clothes. His mouth also gave him trouble, probably a sore jaw. Through it all, he still manages to get up every day and give each day his all! He is going to speech therapy twice a week now and working SO hard there to get some words out. It is like his mouth just doesn't know how to do it right...He loves his therapists toys, especially a farm he plays with there-so that gave me a good idea for Christmas.
It is hard to shop for him because he really doesn't play like typical kids. He likes to play, but it seems like he prefers just taking in his environment and following me around, "helping" me do everything I do. Some days it feels like I still have a young baby in the house because he can't be left alone for a minute or he might hurt himself or make a huge mess. Today he was alone for only a couple of minutes while I took the trash out and he got a childproof lock off the cabinet and filled the dishwasher with an entire box of detergent! With him so much stronger and taller now, it feels like there is no "safe-place" to keep him anymore. Gates and locks don't work, and he doesn't have enough understanding or self-control to not get into things. I am hoping the older he gets the more this will ease...
Next Tuesday in Atlanta he has his scheduled CT scan to check for any possible tumors. Always a super scary time for us! No easy way to do this test either...2 BIG cups of foul- tasting contrast to drink and an IV in his hand. His port cannot be used since they need to also inject contrast intravenously and that could damage his port. Please send prayers his way for him to remain NED!!! (no evidence of disease) Love to all!
Debbie
1 comment:
Love your updates Deb - Connor is such a special little boy and SO lucky to have you as his mommy. I am prayng that things go well for his scan - the thought of my poor baby having to drink all that contrast makes me want to cry for him. He has been thru so much and continues to each and every day. He is a strong little boy and is doing so great. It is wonderful to see him so happy and playful like he has been lately. Let me know if you need help with the other kids this week - love you all.
Laurie
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