Connor's Corner

Tuesday, April 14, 2009

Trying to perk up...


The BLOG and myself! Hope you like the new spring look of things, lol. I noticed I wasn't updating and thought maybe it is because it looks so depressing over here. So this is my attempt to brighten things up!

Here is a recent pic of Connor looking like the big boy he is quickly becoming. He doesn't usually sit in Samantha's booster seat, but his baby cousin was along for the ride and he had the regular car seat. What a treat Connor thought it was to ride in her seat! He was enjoying a forbidden pack of gum as well-so it was definitely a "break the rules" kinda day.

CT scan in the morning...oh wait-it IS morning, I am up late and wanted to update before I went to bed. Please pray for all to go well for Connor. It is a tough day for him-hopefully good news at the end. He cant eat, has to get an IV and we have to shove contrast down him slowly for TWO hours with a medicine dropper before he gets sedated.

If he doesnt cooperate-he gets an NG-tube put down his nose. If the nurse misses, he gets the NG-tube AGAIN. I hope he can get it down by mouth.

Then off to his doctors-hopefully get the results and then need to decide on what treatment he is getting tomorrow.

He is on the schedule for Rituximab-a chemotherapy that targets only B-cells which are believed to be one of the cells that cause his immune system to go crazy on his brain. It is a scary infusion...please pray for his safety and for him to not be scared. He has to have his port accessed for this one, so it is a day of pokes for him...he might end up just doing IVIG tomorrow-not quite sure yet.

Ryan, Stacy, and Samantha are off at Aunt Laurie's house for the night...they have all been busy as well! Ryan was super busy with the school play for a couple weeks (he was on the tech crew as the "Spotlight Man" AND he started working Wednesday nights at the restaurant. I am so proud of him! Samantha got her ears pierced a few day ago and is just so excited about them she can't stand it, lol...and Stacy poor thing, is a nervous wreck over the CRCT testing-she takes after me for sure with her worrying. I know she will do well though, for her sake I hope the testing goes FAST.

More later-better get to bed!

Deb

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*Our Family*

Photobucket

"Connor's 3rd Birthday in Pics"


Before OMS Onset....

Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...

"Holiday Slideshow 2008"

"A Year In Pictures-2008"


Slideshow Stacy Made!

Connor's 2nd Birthday April 2008

Halloween 2006

Connor George Khoury

Connor George Khoury