My friend Tara has been hard at work on a new video of our kids and their struggles with Opsoclonus-Myoclonus Syndrome. It turned out beautifully!
Here is the link if you want to check it out. The song on it is so moving. It is called "Our Hope Endures" very fitting for what all of our families are going through. I hope ya'll take a lookie...
http://www.youtube.com/watch?v=RKRzblX5pwA
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
1 comment:
I love the video and will post a link to it on my blog if that is okay.
Kari
www.loveforlex.com
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