Train fun at Connor's party-or maybe a fight over a choo-choo?
Connor had on a Thomas the Train bathing suit-then decided to take it off, lol.
The Thomas Cake
Need a bigger pool!
Fun outside at the water table.
Just busy-like all of us, lol. Sam is the traveling man these days, different city every week with his promotion. So I am playing super-mom to all the kiddos, who I swear are gonna do me in, lol.
Samantha broke her arm again. She fell down the stairs at Laurie's house last Friday while we were in Atlanta getting Connor's chemotherapy (insert guilt feelings her, lol) Really bad timing-dance pics were today and she is so worried about having a cast in them...the doctor did say it could come off for the recital thank goodness, might go back on after-but at least her big night will be cast-free.
Connor has been raging terribly on the steroids, more from pain than the usual craziness he gets-so he is on an every 4 hour pain med cycle right now. Poor guy is miserable...not much else to say except it breaks my heart to see him like this. He also has begun his homebound schooling-which has been rocky getting started. It is only because his immune system is so low that he is getting these services at home, and since not many kids do this at home-it is new to everyone, us and the teachers. It is only 30 minutes twice a week with the teacher-so he isn't getting a whole lot of time with her-but it is helping him get used to new people, which is a good thing for him.
Stacy and Ryan are excited about summer coming (me too!) School lets out on May 22nd, so not much longer. I can't wait to have more time to spend doing fun things, rather than just rushing around like we are lately.
I'm going to keep this short so I can post soem pics...Love to ALL of you and thank you for all the sweet calls to check on Connor. I appreciate it, especially with Sam traveling, it helps to not feel so alone.
Deb
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
2 comments:
Love you sis! I don't know how you are doing it...tell Sam I don't think the promotion was worth it, LOL. Just kidding, I am so proud of him. Kisses and hugs to Connor - we are going to have a wonderful summer!
Thanks for your prayers for Ryan and all of us. You have a beautiful site for Connor. (and a beautiful family). I don't know much about the OMS, but it sounds almost worse than NB. I see he was stage 1. that is awesome. We will be praying for all of ya'll as well. Love, The Morgans
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