So we had the STEPS evaluation this morning. Much nicer atmosphere than the other neuropsych testing he had in January.
It was set up like a big playroom (playhouse, teeter-totter, trikes, developmental toys, etc...) And the people there were awesome (speech therapist, occupational therapist, psychologist, and a case worker)
Me and Sam did paperwork and answered questions at one table. Connor sat at another table and played with the 3 ladies. He liked that! Only problem was his attention span was so short even some of the stuff he can do-he wouldn't if he didn't feel like it. It took 2 hours for them to get the testing done.
It was depressing answering all the questions-as usual. So much he can't do and so many behaviors that show he is very delayed. But he did do better than in January-so I am glad he is improving. Now the waiting begins...We don't have the date yet of the meeting to discuss the results-but I will post when I know more. Thanks for all the prayers and well wishes-this stuff is so stressful on me and especially Connor.
We started his Decadron tonight-hopefully this will be a smooth cycle without too much pain. He was funny today-he insisted on wearing his Mickey shirt from Disney Wolrd AGAIN today, lol. 3rd time since Saturday! :)
Deb
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Before OMS Onset....
Connor was SO happy and interactive-then OMS struck at 15 months old and he changed overnight...
2 comments:
I hope that you hear good news from his test results!! Travon had his BAYLEY exam this morning and done fabulous in all areas except the expressive language part...which was to be expected since he hardly says 5 or 6 words:( I was proud of him for doing well though and that's all that matters:) Glad that you guys had a great time at Disney!! The pics are wonderful.
~Jodi
www.caringbridge.org/visit/travonstclair
Praying for great results and for you to be lead to the perfect places and programmes for your beautiful boy! God Bless Love Mark Samm Deqlan Logan
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